The University of Surrey is carrying out research which aims to improve the support for older people living with severe frailty and their families.
The focus of the research is on those who have complex care needs and who depend on other people in order to live their daily lives, to enable them to have the best possible quality of life in their final years.
They would like to hear from:
- carers who look after a family member or friend
- voluntary and charity sector workers in end-of-life or ageing areas (non-NHS funded)
- care commissioners and service leads in end of life or ageing facilities
- specialist palliative care practitioners (including hospices)
- researchers
- policy makers
- older people specialist care practitioners across a wide range of professions
- community specialist practitioners across a wide range of professions
- social care providers (including housing)
The first of their two online surveys – aims to find out what you think are the most important palliative care needs (i.e. needs related to the final years of life) for older people living with severe frailty who are living at home.
In this study, palliative care need is understood as having a requirement for comfort and support with a condition that is life limiting that can be met within health and/or social care systems, voluntary care or community groups.
What next?
You can download and read the participant information sheet by clicking here – PDF 201kB
If you are happy to participate, please go to the first online survey at:
https://surreyfahs.eu.qualtrics.com/jfe/form/SV_9HpNCTmTM1akN3n
The deadline for completion is Friday the 27th of November.
If you have any questions, please contact the PALLUP research study team via email [email protected] or [email protected], or phone 07815919559.
Why they are carrying out the study
The larger research aims both to identify and understand the palliative care needs of older people living with severe frailty and to support community services to deliver this care. Establishing consensus on these needs is central to ensuring subsequent stages of the study are aligned to these needs and priorities.
The purpose of the two-round online survey is to establish consensus on the core palliative care needs of older people with severe frailty who are living at home, as defined above. The findings will be discussed at an online consensus meeting which you may be invited to attend.
